{"id":64516,"date":"2026-08-05T12:29:38","date_gmt":"2026-08-05T09:29:38","guid":{"rendered":"https:\/\/ayyildizgundem.net\/?p=64516"},"modified":"2026-08-05T12:29:38","modified_gmt":"2026-08-05T09:29:38","slug":"sirac-icin-dayanisma-gecesi","status":"publish","type":"post","link":"https:\/\/ayyildizgundem.net\/index.php\/2026\/08\/05\/sirac-icin-dayanisma-gecesi\/","title":{"rendered":"S\u0130RA\u00c7 \u0130\u00c7\u0130N DAYANI\u015eMA GECES\u0130"},"content":{"rendered":"

DMD hastas\u0131 11 ya\u015f\u0131ndaki Muhammed Sira\u00e7 G\u00fcnd\u00fcr\u2019\u00fcn tedavi kampanyas\u0131na destek olmak amac\u0131yla 10 A\u011fustos\u2019ta Sar\u0131ana Mahallesi\u2019ndeki lunaparkta dayan\u0131\u015fma gecesi d\u00fczenlenecek. Saat 19.00\u2019da ba\u015flayacak etkinlikten elde edilecek gelir, Sira\u00e7\u2019\u0131n Valilik onayl\u0131 yard\u0131m kampanyas\u0131na aktar\u0131lacak.<\/p>\n

\"\"<\/p>\n

Marmaris, Duchenne Musk\u00fcler Distrofi (DMD) hastal\u0131\u011f\u0131yla m\u00fccadele eden 11 ya\u015f\u0131ndaki Muhammed Sira\u00e7 G\u00fcnd\u00fcr\u2019\u00fcn ihtiya\u00e7 duydu\u011fu gen tedavisine ula\u015fabilmesi i\u00e7in bir kez daha tek y\u00fcrek olacak. Marmaris Belediyesi, Marmaris Ticaret Odas\u0131, GETOB, Tazelenme \u00dcniversitesi, \u00fcnl\u00fc pop m\u00fczik sanat\u00e7\u0131s\u0131 G\u00f6k\u00e7e ve Marmaris\u2019te ya\u015fayan dijital i\u00e7erik \u00fcreticilerinin katk\u0131lar\u0131yla, \u2018Lunapark\u2019tan Y\u00fckselen Umut\u2019 slogan\u0131yla ger\u00e7ekle\u015ftirilecek destek gecesi, 10 A\u011fustos\u2019ta \u00e7ocuklar\u0131 ve aileleri Sar\u0131ana Mahallesi\u2019nde bulunan G\u00fcne\u015f Lunapark\u2019ta bir araya getirecek. Saat 19.00 itibar\u0131yla ba\u015flayacak etkinlikte lunaparktan elde edilecek gelirin yan\u0131 s\u0131ra alanda ger\u00e7ekle\u015ftirilecek m\u0131s\u0131r, pamuk \u015feker ve benzeri \u00fcr\u00fcnlerin sat\u0131\u015f\u0131ndan sa\u011flanacak gelir de Sira\u00e7\u2019\u0131n kampanyas\u0131na ba\u011f\u0131\u015flanacak.<\/p>\n

BA\u015eKAN \u00dcNL\u00dc\u2019DEN DESTEK DAVET\u0130<\/strong><\/p>\n

Marmaris Belediye Ba\u015fkan\u0131 Acar \u00dcnl\u00fc, Sira\u00e7\u2019\u0131n tedaviye ula\u015fabilmesi i\u00e7in zaman\u0131n b\u00fcy\u00fck \u00f6nem ta\u015f\u0131d\u0131\u011f\u0131n\u0131 belirterek, \u201cMarmaris, dayan\u0131\u015fman\u0131n ve birlikte hareket etmenin en g\u00fczel \u00f6rneklerini daha \u00f6nce defalarca g\u00f6sterdi. \u015eimdi Sira\u00e7 evlad\u0131m\u0131z\u0131n sa\u011fl\u0131\u011f\u0131na kavu\u015fabilmesi i\u00e7in ayn\u0131 duyarl\u0131l\u0131\u011f\u0131 b\u00fcy\u00fctme zaman\u0131. 10 A\u011fustos\u2019ta \u00e7ocuklar\u0131m\u0131zla ve ailelerimizle lunaparkta bir araya gelerek hem g\u00fczel bir ak\u015fam ge\u00e7irecek hem de Sira\u00e7\u2019\u0131n umut yolculu\u011funa destek olaca\u011f\u0131z. T\u00fcm kom\u015fular\u0131m\u0131z\u0131 bir ak\u015fam\u0131 Sira\u00e7\u2019\u0131n gelece\u011fine umut yapmak i\u00e7in dayan\u0131\u015fmam\u0131za ortak olmaya davet ediyorum\u201d dedi.<\/p>\n

TEDAV\u0130 \u0130\u00c7\u0130N ZAMAN KR\u0130T\u0130K \u00d6NEM TA\u015eIYOR <\/strong><\/p>\n

Nurettin Gen\u00e7alio\u011flu Anadolu Lisesi \u00f6\u011fretmeni Sevil Kotano\u011flu ve Mehmet G\u00fcnd\u00fcr\u2019\u00fcn o\u011flu Muhammed Sira\u00e7\u2019\u0131n, Dubai\u2019de uygulanacak Elevidys gen tedavisine ula\u015fabilmesi i\u00e7in yakla\u015f\u0131k 2,9 milyon dolarl\u0131k tedavi bedelinin kar\u015f\u0131lanmas\u0131 gerekiyor. Hastal\u0131\u011f\u0131n ilerleyici \u00f6zelli\u011fi nedeniyle kampanyan\u0131n en k\u0131sa s\u00fcrede tamamlanmas\u0131 ve tedavi s\u00fcrecinin ba\u015flamas\u0131 kritik \u00f6nem ta\u015f\u0131yor. Marmaris Belediyesi g\u00f6n\u00fcll\u00fcler ve destek\u00e7ilerle birlikte Sira\u00e7\u2019\u0131n kampanyas\u0131n\u0131n tamamlanmas\u0131na katk\u0131 sa\u011flamak amac\u0131yla kent genelindeki fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131n\u0131 s\u00fcrd\u00fcr\u00fcyor.<\/p>\n","protected":false},"excerpt":{"rendered":"

DMD hastas\u0131 11 ya\u015f\u0131ndaki Muhammed Sira\u00e7 G\u00fcnd\u00fcr\u2019\u00fcn tedavi kampanyas\u0131na destek olmak amac\u0131yla 10 A\u011fustos\u2019ta Sar\u0131ana Mahallesi\u2019ndeki lunaparkta dayan\u0131\u015fma gecesi d\u00fczenlenecek. Saat 19.00\u2019da ba\u015flayacak etkinlikten elde edilecek gelir, Sira\u00e7\u2019\u0131n Valilik onayl\u0131 yard\u0131m kampanyas\u0131na aktar\u0131lacak. Marmaris, Duchenne Musk\u00fcler Distrofi (DMD) hastal\u0131\u011f\u0131yla m\u00fccadele eden 11 ya\u015f\u0131ndaki Muhammed Sira\u00e7 G\u00fcnd\u00fcr\u2019\u00fcn ihtiya\u00e7 duydu\u011fu gen tedavisine ula\u015fabilmesi i\u00e7in bir kez daha …<\/p>\n","protected":false},"author":1,"featured_media":64517,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[1191,1325,447,3619],"class_list":["post-64516","post","type-post","status-publish","format-standard","has-post-thumbnail","","category-genel","tag-ayyildiz-gundem","tag-gece","tag-marmaris","tag-sirac"],"_links":{"self":[{"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/posts\/64516","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/comments?post=64516"}],"version-history":[{"count":1,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/posts\/64516\/revisions"}],"predecessor-version":[{"id":64518,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/posts\/64516\/revisions\/64518"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/media\/64517"}],"wp:attachment":[{"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/media?parent=64516"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/categories?post=64516"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ayyildizgundem.net\/index.php\/wp-json\/wp\/v2\/tags?post=64516"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}